I have Ehlers danlos syndrome which seems to be getting worse. I can't travel or mobilise much which is frustrating for a previously very active person.
I had a tear or two in my spine repaired but it didn't restore my function. I have systemic pain and problems being upright in general.
My husband posted about it quite some time ago and I mention it from time to time. https://steemit.com/life/@azurejasper/sharing-this-isn-t-easy-for-me-and-i-m-not-comfortable-about-it-but-this-community-has-become-so-important-to-girlbeforemirror
Doing crafting things like this gives me something I can do with our little guy, but even these things come at a price.
Reading the post made me teary eyed both at how sweet your husband is and with the generosity of the Steemit Community. I have such high respect for you. You are a true survivor and I could not help but marvel at your courage. I am a 4th yr nursing student and I have met a lot of patients who have difficulties in mobility. But havubg systemic pain is a lot to handle.
You didnt have to sponsor for my contest if you meed the money. I am doing this to help others and you may need it more. You are really generous. May God bless you @girlbeforemirror.
Do tell me if there is anything more I can help. I saw @littleblue's entry and I am in awe with the raw talemt he has. I hope you enjoyed making arts and crafts with him. You are a great mother. Im sure he will grow uo to be a fine young man under your wing. Do take care of yourself.
Do you have discord? Would love to talk to you more often
I'm am / was a registered nurse😊
Discord GirlBefore#7455