Hello readers,
Two months ago, I saw this post brought to my attention by @kryptokayden:
Source: https://steemit.com/introduceyourself/@inahthewarrior/inah-the-warrior
| Quoted below for those who do not want to click on the links to the post or to check out other posts from @inahthewarrior |
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Inah The Warrior
Good day everyone!
So after knowing Steemit for about 2 years now, I finally pull the trigger and joined. Here is my story.
My name is Karen, I am from the Philippines, mother or a beautiful daughter and a registered nurse. Like every woman, I was so happy when we found out we are expecting almost 3 years ago. We are even happier when we found out we are expecting a baby girl!
a picture of me during my pregnancy
Fast forward a few months, the time has come, this is finally it. I was sent to the hospital to give birth to our precious little daughter! Me and my husband are so excited. And then I finally gave birth, I was resting and recovering when the doctor came to me and gave us the worst news I have ever hear heard in my life, our little princess is diagnosed with Ohtahara Syndrome. It broke me and my husbands heart but it never made us love our daughter less, in fact, it only made us love our daughter even more.
Inah when she was about 3 months
So what is Ohtaha syndrome?
Ohtahara syndrome is a neurological disorder characterized by seizures. The disorder affects newborns, usually within the first three months of life (most often within the first 10 days) in the form of epileptic seizures. Infants have primarily tonic seizures, but may also experience partial seizures, and rarely, myoclonic seizures. Ohtahara syndrome is most commonly caused by metabolic disorders or structural damage in the brain, although the cause or causes for many cases can’t be determined. Most infants with the disorder show significant underdevelopment of part or all of the cerebral hemispheres. The EEGs of infants with Ohtahara syndrome reveal a characteristic pattern of high voltage spike wave discharge followed by little activity. This pattern is known as “burst suppression.” Doctors have observed that boys are more often affected than girls.
Having Ohtahara Syndrome is something no parents would wish to the worst of their enemies, Inah's ability are very limited and she require constant care, which as a nurse fortunately I can provide. Treatment is lifetime and it very expensive, especially here in the PH. I had to stop working to take of Inah full time and make sure she are well looked after. Only my husband is working now and to be honest it is not enough to cover her expenses as we most of the time have to take her to the hospital especially when she is having recurring seizures.
Inah turned 2 years old last February and we are trying to give her the most comfortable live she could ever lived.
Here is Inah taking a little swim with her cousins.
Me and my husband is never losing hope that one day Inah can live normally and enjoy her life. I am asking everyone to include her in her prayers and I am shamelessly asking for a little financial help if there are people here who can. Ohtara Syndrome is a serious condition and a very expensive one to maintain but we are not giving up. If you can send some help and prayers our way, it will be really appreciated.
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Signed: Karen and Inah The Warrior.
Source: https://steemit.com/introduceyourself/@inahthewarrior/inah-the-warrior
| If you check out her profile and read her updates, you would find that she could not post very often because her needing to take care of Inah. |
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Hence, this account was set up by purchasing a starter set of @steemmonsters which created this account for the purposes of helping Inah (@inahthewarrior).
@kryptokayden and I can not do this
just by ourselves and
Inah (@inahthewarrior) could not do much here -
so, we are asking for help -
volunteers to play @steemmonsters or blog
to win or earn for Inah (@inahthewarrior).
I am an investor and sponsor of the #ccc community and have limited resources especially time. But, I'll do what I can with what I have and so can you.
@kryptokayden found Inah (@inahthewarrior) and have stepped up to help; I am supporting her kind initiative and hope that you would reach out to her or to posts from Win for Inah (@win4inah)
| Quoted above is for those who do not want to click on the links to the post or to check out other posts from @inahthewarrior BUT, IF you do care Please go check out all her post - not many - and see how you can help. |
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Thank you❗
- P.S. - I tried to promote this post using DEC but it has been refunded due to "next round full". I'll try again later.
It's "later" ...
This post is promoted with 6,400 DEC.
See Promote Your Posts with the Dark Energy Crystals Steem Engine Token! - @steemmonsters (74)
upvotes from @steemmonsters and trail.
But, the biggest support came from @theycallmedan - Thank you❗
