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     4 years ago  

    I haven't taken any meds since I was in the hospital thankfully, but the variation between each TBI is so big that it's really hard to compare of course. I do supplement with a ton of things for the brain, I feel as though they've worked well but could be placebo. I'm seriously sorry to hear that you haven't felt much progress. If there's any way at all I can be of assistance when it comes to things that worked or knowledge, let me know. Would be curious to hear what all you've tried.

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       4 years ago  

      What are things you've taken? I don't think it's placebo at all or at least from studies I have read(there are mostly using healthy patient). I am currently learning neuropharmacology because of it. Though it is not my major but it has been something I studied for about two years now. I also left a comment on your dad's post about my condition.

      So far & daily, I have been taking piracetam but previously, I took pennywort. Now I am experimenting with ginkgo biloba but piracetam does the job better than other stuff. As the moment I am writing this, I was off on piracetam and currently on again, self-studying and experimenting with piracetam by taking 1600mg dose/day. I also think some combination of vitamins B did the job.

      I have had couple incident with concussion but it has been 3 and half years for my major brain injury and during those three years, I got several more accidents and bang my head couple of times. I don't have problem with cognitive functioning but I have problem with executive functioning (controlling impulses & emotion and also attention), almost ADHD like. I suffered from memory loss, there are many memories growing up that I didn't remember. I woke up from the accident speaking different language and losing my inability to speak what is supposedly my mother tongue. There are many new personalities that I picked up too.

      I do wonder, does he have trouble with speech? trouble with naming things? more pauses? easily fatigued?

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         4 years ago  

        I like that you're taking it into your own hands! Often times that's what we need to do nowadays, no matter how good a doctor's intentions may be.

        For my brain, I currently still take:

        -Neuro Mag from Life Extension, which I believe is the reason my memory is so good. I remember FAR more than I ever did before the injury. Pretty crazy.
        -Alpha liopic acid
        -Bacopa
        -Ubiquinol CoQ10

        I stopped taking these two a couple months ago, but was on them for about 8 months after my injury:
        -Acetyl-L-Carnitine
        -Fish oil

        The Neuro-Mag is really a miracle drug in my opinion, but some of the memory increase could definitely be attributed to Bacopa too. Either way, maybe some of these could help you out. Hoping you can find some answers!

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           4 years ago  

          ooh, those are something I took as well. My only problem is not being consistent with those but I am changing that. If I want to be a healthy functioning adult, I have to be more rigorous about it.

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             4 years ago  

            I guess we all struggle with the problem of getting things in order, the beauty of growing up. I have mine in clear eyesight in the kitchen in a spot where I know I'll be every morning. Seems to help build the habit somehow.

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