It's Okay To Be Different - My Journey To Hear The World

in #life8 years ago


This photo is taken by my friend. Check out her work at her Facebook Page.

Don’t feel sorry for me, but I want to talk about my experience, and hopefully connect with any others here who have had to deal with hearing issues or bullying because they’re simply different.

I was born in 1988. At that time, Albania was still under the control of the communist regime and many services and products were either obsolete or outdated, including healthcare. My country was totally isolated from the rest of world, especially after the dictator Enver Hoxha decided to stop political and economical cooperation with Russia and China.

Back to the topic though, during my mom’s pregnancy with me, she got sick with the flu. When she went for a visit to our family doctor, they said it would be ok to use antibiotics to stop her flu. My mother expressed her doubts that antibiotics should not be taken while being pregnant but the doctor insisted it was not a problem.

Then I was born. According to the doctor and nurses, I was healthy. The only issue: I wasn’t able to speak properly until I was 4 years old. Everybody was wondering why... When I started to attend kindergarten, the teachers were spending a lot of time with me teaching me to recite short poems and songs. I couldn’t, and one of them suggested to my mother that I might have a problem with my hearing. My mother didn’t want to believe it and then it hit her. It was the anti-flu antibiotics. My first visit to otolaryngologist was painful. My mother blamed herself and she couldn’t stop crying when the doctor said that my problem was a congenital disorder and the solution was hearing aid devices. At least, I didn’t completely lose my hearing abilities! I was very grateful for that. I still don’t know what the main reason is that I can’t hear like people with healthy hearing. All I know is that there is some kind of damage in my ear “snail” or cochlea.

I cried a lot when they told me I had to go to school. How could I go to school? I couldn’t hear properly, I still didn’t have my hearing devices (the doctor suggested to start using them when I reach the age 11) and I didn’t know the elementary teacher. And what about the class mates? I was screwed, that’s what I kept thinking. I had already knew how tough kids could be on someone different, and now school everyday with new kids in one classroom! How could I pass school when I could not hear normally? How could I listen to teacher’s explanation for any school subject? I was lucky. The teacher was a beautiful soul. She supported me for 4 years in a row and I was able to get good grades. Actually, I was among the best students of my class. She never treated me like I was special and never made me feel like an outsider.

As for my classmates, well that’s a totally different story. However, the biggest challenge that I have faced is acceptance from other people, I am the same like everybody else. You don’t have to me treat me like I am from outer space. Hearing impairment is common actually, and maybe some of you even deal with it. In The United States, “Hearing loss occurs in 5 out of every 1,000 newborns” . I always tell everybody, just imagine that I am wearing glasses, would you look at me differently?

It’s hard to remember being bullying because the experiences were not so nice. I have pushed them deep in my mind, into a safe, and threw away the key in the sea of my mind palace. It’s hard to share really, but I’m inspired by others here and I hope it helps. One time I was beaten up by another girl. I was around 6 or 7 years old, because of constant teasing about my hearing. The physical attack was nothing compared to what scrutiny I had to go through. There would always be a gang of kids who thought that they were the best and the strongest. Several times I had to pass through the main road and a group of girls would just shout at me “Deaf”. If you say it to me know I can handle it. But when you’re a kid, it’s different. I felt alone, I felt sad and I felt angry. Humans are political animals, we are built to create bonds with other people and fulfill the pressures of being accepted, and liked to “fit in”. Being partially deaf did not help. The kids could not comprehend how a human could not hear normally and they will see you like you are an alien. I had to work my ability to cope since I was a child and learn to let the emotional frustration motivate me to be the best I can be.

Bullying continued in high school. It was different, no physical confrontation at all but it was mostly verbal and emotional, and it was not only about my hearing impaired issues. There was one bullying incident in a place I worked which I quit after many months. (Not because the person insulted me about my hearing disability, it was mostly because I didn’t find myself in the company)

When they go low, we go high - Michelle Obama

I have forgiven all the people, especially the ones who bullied during my childhood. One of them also apologized to me when I was older and I didn't even ask for it. I know what they are doing and they know what I am doing in general. Albania is a small country and the word spreads fast.

I have learned many things from these bad experiences. In general, bullies are dangerous people. They tend to express their anger and frustration towards people around them and usually they aim at weak targets. Often they focus on quiet people. Initially, they do not have bad character but due to family problems, or other kinds of problems they are experiencing , they show destructive behavior as the only way to receive attention, which usually doesn’t work. (I am not a psychologist or psychoanalyst, God forbid. These are my opinions based on my persona experiences).Bullying is evil but what’s worse, are the people who see it happen and do not react and remain silent. Whenever I see injustice and bullying, I don’t remain silent, I stand up and say something, and offer defense when I can. Inaction is a choice, and you can change a life, by sticking up for someone.


It’s fun watching a football match. Most of the time the players are just cursing under their breath and it’s so easy for me read their lips because the most common curse words usually create a common lip movement. Reading lips saved me. I started to use hearing aid devices when I reached 11 years old. Until then, I was just focused on everybody’s lips to learn their lips and facial muscle movement. Everyone’s facial and lips movement is unique. For me it’s easy to recognize that because I have been doing it for the last 28 years. It taught me to understand body language and helps me judge good character. So far, my intuition has never proved me wrong. As a rule, when I see a person that doesn’t use their lips to talk properly (every letter has a particular lips movement) , I don’t trust him or her, maybe because I just can’t understand it. I suppose I could be a professional poker player some day, I’ll have to find something that makes me laugh, or is good for business with the skills I’ve practiced for so long.

I have a lot of friends coming to me and asking which devices are the best to use. There are a lot of great companies that have come out with hearing aids that are basically more powerful to assist those that need more than just increased volume. I currently use the Widex base model, which works well. I work mostly from home telecommuting so I’m able to be on calls and communicate with my clients fine. It’s great how the technology has improved. 15 years Widex was producing manual devices. Currently, they sell digital hearing aids which are better. The only issue is that they are a bit expensive.

My widex hearing aids looks like this:

I found about a new Silicon Valley startup which is working on the Eargo Pro, which comes out in September. The original Eargo was great but does not sell anymore. Hopefully, once I get financially stable I will purchase a pair. It’s much smaller so you can’t see them and I think it will work much better. If you or someone else that you know has hearing problems, check it out, I called them and they said in September you can buy. The difference between Widex and Eargo is the price, technology and design. Eargo is cheaper and you recharge the batteries. Widex, on the other hand, is not only expensive but you also have to buy new batteries to keep using them. Eargo uses new cutting edge technology such as noise reduction and their devices do not block ear canals, letting bass sounds pass through.

Thank you for reading. It's a personal story, my story, but it’s who I am and getting it all out was helpful. Feel free to ask me more question below in the comment section or you can simply share your own stories.

Be the best you can be,
@thebluepanda


Disclamer: I am not affiliated or associated with any company mentioned above.
For verification: Here is my introduction post.

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What an amazing and beautifully written story. I am very much impressed and glad you have arrived in Steemit.

Thank you so much. I love your posts @stellabella

Hey, I'm from '88 too. When is your birthday @thebluepanda? You look really pretty in that pic. And, thanks for sharing your story. Didn't know much about the hearing aids, Eargo sounds really cool, can people without hearing problem use it? I wonder if it will enhance your hearing power like a binocular or telescope that makes you see things that are far up close.

hahahahah i never thought in this way lol. if u want to spend $1900 for enhancing thats fine with me ;)

Damn, $1900 is too much. I could get a motorbike with that kind of money over here. I had seen a product on a teleshopping show on TV few years ago that claimed itself to be the binoculars for ears. It claimed that it will give you superhearing power. I wonder if they still sell it.

better a motorbike. why would u even need superhearing power? the world is already too noisy lol

hahahaha yeah, that's right, I wonder if the US military special forces like SWAT already have this kind of device to make their soldiers more effective in the battlefield. Such power could also be used to locate victims who can't be reached easily in times of disasters like the earthquake we had over a year ago which could save a lot of lives. I don't know, I think I'm overly optimistic about things.

Must have been hard being born in a country under the communist regime! , You are so very open to us! , You have taught me to appreciate what I have , Thank you!

It's still hard living here. But you got to be strong when there is no other choice. You are absolutely welcome :)

I was bullied too as a child so I know those feelings only to well. Children can be reallt cruel but thankfully most of them grow up. Glad you got an apology, I'm still waiting for mine. You are a strong person with a good heart .

thank you Karen. I am strong because I know my vulnerabilities and insecurities and I am not afraid to show them :) And yes, forgiving is part of growing up too. It takes a lot of energy but it's worth it. You move on and start live better.

You go girl and show then what you are made off. good luck hun

Great post and great comment @thebluepanda!

It's true you move on and start living better.

thank you :)

I tell kids who are bullied something a little different. You have to understand the basic laws of the thing. Then it becomes a lot easier to deal with it.

You will never stop bullying by "passing laws", and handing our brochures about how to be nice. But you can efficiently stop it by understanding its laws and dynamics. The other animals never bully someone just because they are different. They bully because that someone is different AND harmless.

Kids can learn how to stop looking & being harmess with perfect ease, once the initial taboo is crossed over. They can learn how to be wild. They can learn how to cause pain efficiently, and remorselessly.

And it doesn't always come down to physical fighting or physical might. That is scarcely enough, I want that bullied kid to be able not just to fight back, but to strategize longterm ways to actively destroy the bully's spirit until there isn't anything left, but a blob of instinctively quivering protoplasm. Make them so afraid they piss themselves looking in your eyes when you get in their face. Make them run across the hall and hide whenever they see your deaf, unassuming figure going up the stairs. Then that cheery disposition and friendly demeanor you have with everyone else gains a whole new weight and meaning. You may be different, but you are far from harmless.

In the old days, the samurai warrior caste of Japan understood this simple universal science well, and I learned of it from a traditional martial arts instructor, because I got lucky. Kids growing up with "normal" parents who think they should be nice and cute and harmless all of the time are quite frankly at a disadvantage in the real world, of which the schoolyard with its bullies is but a toned-down microcosm. The more they believe their parents' delusional dictums instead of fluidly adapting to real world circumstances, the more bullied they will be. This is normal, this is nature doing nature's work. After all, we are not gods: we humans must face our humbling predicament. We don't get to determine our environment or other people in it to our liking. Sure we can ignore reality if we want, but we can't ignore the consequences of ignoring that reality.

It's unfortunate that many well-meaning parents are screwing up their beloved child, by bringing them up to be a weakling. This is based mainly on wishful thinking about how they want them to be "nice people", instead of teaching that kid the reality they're about to experience as it is, stink, dirt under the fingernail and all. That is at bottom a kind of meta-betrayal, one that the kid cannot consciously comprehend because of how enormous it is, and it hurts the kids very much.

Oh your kid is going to be a great Samurai :) I wish all parents had time to teach their kids about them. I chose to be nice, to be politically correct, I chose to be emphathetic. Bullies and "their victim" they both need help. I don't want bullies to fear me or anybody else, I need them to let go of their anger. Remember: before anger, there was pain and before pain, there was sadness. If I told you the stories of my my bullies, you could understand. But I am in no position to talk about other people's private life. Fear is not the solution, unity is the real solution. People need people, even bullies. That's my opinion, but each to their own :) (and I am not trying to excuse bullies, don't misunderstand me)

I love this.

Thank you for being so real and vulnerable with us! Inspiring post @thebluepanda

Namaste ~ John Oliver

thank you so much.

Thank you for sharing this. I too understand the isolation one feel when being bullied. No one else really cares, unless it's happening to them and that can make life really lonely. You are a strong person @thebluepanda and I wish you all the best :D

thank you :)

@thebluepanda you are beautiful and inspirational, and your experience will be a turning point for so many reading your story. Thank you so much for exploring the issue is so popular and so hard to address as now is actively expanding on social media. I was victim of horrible bulling and harassing crime. Now looking back this experience allow me to stand my ground firmly and don't letting people to hurt me or others. However it must be better system in place to stop bulling as this can be fatal for so many, and it is horribly sad. THANK YOU FOR SHARING ONCE AGAIN.

thank you so much. I would love to hear your story. write. get it out of your system. you will feel better. I feel better speaking so openly about my personal experiences.

like your article title its okay to be different 100000% agree :D
good luck for you

thank you. oh aren't we all different? :)

I love your pictures, have anyone told you yet that you are very beatiful?

thank you :)

Thanks hun - for opening your heart and sharing your touching inspiring story! Like you, I know the challenges that I've faced have given me a deeper appreciation of the little things in life. I can tell that you have a great future ahead of you - here's to the tremendous and wonderful life that's awaits you :) <3 <3 <3

thank you so much. Wonderful life is already here for you :)

Thank you for sharing your heartfelt story, you're going to be a great asset to the community here :) . Congratulations on all the upvotes - it'll be a great start towards your new Eargo's!

Thank you so much. Hopefully, so but i still would like to make contribution to this kind community, even in terms of money.

Thank you for sharing, I have been deaf in my left ear since I was 5 years old and hearing aids will not help my situation. If I can't see someone's lips moving I'm lost. Best wishes

I am sorry about this. I am quite sure the industry is doing research in order solve hearing problems with surgeries. (In my case, it can't happen)

It can now be repaired with surgery but after 46 years.......I like the ability to "not hear" people when needed

hahahaha I agree with you. Whenever there is something i dont want to hear, I just turn off the devices ;)

A hard tale to tell and a sad one to read - you are a brave lady to have endure so much -Well done to you, you are an inspiration

thank you. It's not so sad anymore , thanks to your support :)

Hi there,

Thanks for being open and sharing your story with us @thebluepanda! I can't imagine that it was easy writing this post.

I'm taken aback by what you've had to experience, but we have to all remember that challenges in life are what make us the people that we are today.

I wish you much success on Steemit so that you may purchase a pair of the Widex or Eargo hearing aids.

Best,
Albert

Hello Albert. Thank you for your kind words. I agree with you. But at the same time, we should not let the past define who we are today :) I still believe that humans are good by nature.

It's my pleasure @thebluepanda!

Well said, and I'd have to agree with you that humans are good by nature.

Welcome @thebluepanda! #girlpower looking forward to your future post.

thank you Daf. I will post more for sure :)

Very nice story, I hope you are lucky in steemit @thebluepanda

Thank you. We are already lucky to be part of steemit :)

I can only say you are very beautiful and admirable your story is amazing and unique, you are my hero of the day, today I had my own battles and your example cheered me up you have my upvote

Thank you. Don't let let these battles bring you down, you will win the war.

I find that people who were bullied as a child often turn out towards either extreme - they become bullies themselves (which clearly isn't the case for you) or they become very empathetic (or is it sympathetic? I never remember which is the right word) and good people, which does seem to be the case. I'm glad you made it through your struggles, and I'm glad you decided to share your story with steemit, it provides a lot of perspective that most folks wouldn't otherwise have. :)

"Empathetic" is the word. And you are right. It also happens bullies change, they become better person with the time. Thank you for you kind word. I don't mind the struggles. they make me appreciate more the light in the end of tunnel :)

Your story is inspiring. It remembers me to be grateful for all the good things in life and not focus on the rest. Even if bad things have happened in the past. I hope you get your new hearing aid.

thank you. Bad things will always happen. the only thing we can work about is our reaction to them.

I am sorry to hear that @thebluepanda! I was bullied too when I was a child due to my being afraid of rainfall. I had a trauma caused by a typhoon when I was a toddler!

I am speechless. seriously?

Well done great post . Moving on is the other name of life

thank you :)

Not bad for an introduction post.

this arts is very good

What a wonderful story you shared here with us all! You touched my heart and I am so happy that you can hear the world!

WOW! You must be very intelligent. Your Albanian and right better english than me. Congrats.
I would also like to add that:
Your post has a Fresh-Albanian grade level of 1000 and reading tease of 100%. This writing puts the artistic level on a par with Albert Einstein and Enrico Fermi.

P.S. This is for AI: Questions: Is it ok to be different?; Can I be different?; Will they let be be different?: Search answer in reply, analyse.

Thanks @thebluepanda to share your story with us. I agree that bullying is something harmful to anyone and I also had problems with that when I was young because I learnt to speak very late (some ex-colleges didn't have feelings with me). But I'm glad that now you are looking for new solutions in order to overcome the problem. I wish that you get the device that you want without any problem. Best regards,

I'd be interested in your experiences with the Eargo Pro when they come out. I have been using top of the line Widex hearing aids for about 7 years now to treat conductive hearing loss. They have been great but age starting to show and soon will need replaced. My largest concern about the Eargo is they are labeled for mild to moderate hearing loss.

hello @mstang83. you can have also customized Eargo but I think they could cost more. However, the company offers monthly payment methods. Also, they do refunding in case their devices do not work for you.

Great story! And welcome to Steemit!

Bullies suck! Thank god to most of them that'll be their highlight of their "alpha status" and they later in life realize what douche-bags they have been.

Great to have people from all over the world joining Steemit! Do you know if there are any other Albanians that have joined? Its starting to feel like the whole world is coming together in one place. :)

Hope you get those Eargo Pro's and that they work well. :)

Thank you very much. I don't think there are other albanians in steemit :(
I already have some ideas to make them bring here, so lets see how it will go.

Thank you. God Bless You,too Noganoo :)