Many people with EDS are diagnosed fibro wrongly. Among other things. It is not as rare as doctors say. Just misunderstood, underdiagnosed and mismanaged.

I have a motivated mind, but my body has given up at the moment at least.
I am hoping to generate more belief and support for Arnold. Because I need more people contacting organisations outside of this platform.
He needs appropriate care and he needs it funded.
I get easily tired, we need a constructive collaborative approach.
Team Philippines are amazing, but they need people outside of the Philippines to help them lobby for his treatment. Say hi on there discord charity chat. A few nurses there are doing amazing things.