Part 5/11:

The story underscores that hemophilia is one of the most expensive illnesses in the world, requiring lifelong medication that costs thousands monthly. The family shares that they have to prepare and submit extensive documentation for annual subsidy applications, highlighting bureaucratic hurdles and the emotional toll of uncertain financial support.

Managing Daily Life and Medical Routines

Despite these challenges, the family demonstrates resilience through meticulous management of their child's health needs. The family members take turns administering medication, with the narrator describing the process of injecting HemLibra into a syringe, while also managing other aspects of healthcare.