Part 2/11:

The story begins with a stark reminder of the exorbitant cost of hemophilia treatment, specifically with the reference to 3 ml of HemLibra, a cutting-edge medication that costs $31,000 per month without subsidies. This "liquid gold" is presented with a tone of both gratitude and concern, highlighting how vital it is for the family yet incredibly expensive.

The narrator explains that hemophilia A is a condition where one of the crucial clotting factors — Factor 8 — is missing. To visualize the disorder, they describe a series of dominoes representing the clotting factors, which, when disrupted, prevent a proper clot from forming. This means that even a minor injury can lead to serious bleeding episodes, sometimes spontaneous, which necessitates ongoing treatment.