This is a fundraising account. Proceeds from posts and curation will go to charities supporting research, education and outreach for people with chronic illnesses.
Points with a purpose refers to the fact that I will use these giveaways to raise awareness for the new community on Hive I created supporting people with chronic illnesses
Search communities for "spoonies unite" or follow this link please consider joining the community. You do not need to have a chronic illness (allies welcome) and posts do not need to be illness related. This account will be upvoting posts in this community at random.
The giveaway
50 ecency points will be sent to the winner randomly chosen using wheelofnames.com
I intend to increase the giveaway amount if these giveaways gain popularity :)
To enter:
leave a comment. Any comment will do-except of course bots hate speech etc. One entry per account
Please either upvote this post and/or re-blog as well. I need your help with engagement to raise awareness and crypto for a good cause
The deadline to enter is September 2nd 2023 at midnight New York time. Winner will be notified via a reply to their comment or in an upcoming post. Prize will be delivered shortly after the drawing.
Good luck and thanks to all who are participating.
Count me in! How are you doing?
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Thanks for the tips. Much appreciated.
I'm doing ok. Started a new beta blocker for POTS and it's kinda wiping me out (though I am deficient in both iron and Vit D so that could be a contributor) I may switch back to supplements (nattokinase and huperzine A). Other than that doing alright.
Thanks for asking. I hope you are well. ♥️🦄
Which beta blocker are you taking? They can be hard to adjust too! I take one to control my heart rate as well.
Metoprolol ER It is helping tremendously with my HR and blood pressure. My blood pressure and heart rate spikes when I am sitting /standing up (POTS thing). My watch is also showing I am sleeping better. I have a high sleeping heart rate and this is helping. I have noticed a huge spike in debilitating fatigue since starting it , but there are other factors at play and it may not be the beta blocker.
I was taking propranolol before with no noticeable side effects..but since it targets Beta 1 and 2- it was starting to effect my asthma. There is less of a risk of that with the new medicine that targets B1 exclusively.
Does your medicine work well for you?
I am feeling so
That's miserable waking up with a high heart rate. That extended release will hopefully work better for you. Propranolol and asthma don't get along well! Mine's great, Nebivolol is what I'm on currently, worked much better that Metoprolol for me. I don't wake up with a pulse of 110!
Yeah waking up with high heart rate sucks and makes for very shitty sleep. According to my watch lately (before new med) my sleeping heart rate was in the 70's-80's. I'd wake up in the 90's -100's Now it's going down luckily.
That's good to hear! Everyone reacts differently to every med, just finding the one that works best for you is the key. POTS is one of those diseases that really sucks...
I just realized something in replying to you. I stopped taking my nattokinase supplement to see how I reacted to the new beta blocker. Lots of POTS/ LC /ME patients report increase in fatigue and orthostatic intolerance if they stop taking nattokinase.
Now that I have baseline HR/BP reading from the new medicine I will start taking nato again and see how it goes.
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