The other face of Autism - Part 2 | My presentation in Catarsis Community

Hello, dears!

As many of you already know, I am the mother of a blue princess 💙. Many times I say that it doesn't affect me, that even when I accept her condition, I see her as a normal child and we haven't gone through those rejections from society, which makes an ugly face to what is different.

In my case, I suffer with school issues. Amelie is 5 years old and recently, because of her age at birth, she went to 1st grade but her psychologist recommended that she stay in kindergarten, as she needs to tear, paint, play with things that only those levels give.

¡Hola, queridos!

Como muchos ya saben, soy mamá de una princesa azul 💙. Muchas veces digo que no me afecta, que aún cuando acepto su condición, la veo como una niña normal y no hemos pasado por esos rechazos de la sociedad, que le hace cara fea a lo diferente.

En mi caso, sufro con los temas escolares. Amelie tiene 5 años y recientemente por su edad de nacimiento, pasó a 1er grado de Básica pero su psicóloga recomendó que se mantuviera en inicial o kinder, ya que ella necesita rasgar, pintar, jugar con cosas que solo en esos niveles dan.

Source

Even when she graduated, I asked the teachers and the administrative staff of the school not to promote her to a higher level, but I was reassured, because I brought medical reports and everything necessary for them to accept my request.

Amelie receives occupational and speech therapy. She doesn't sit, doesn't wait and doesn't adapt to changes. If you irritate her she is capable of biting you or crying inconsolably. She is not aggressive with other children, she likes them, but she can make them fall down for play and if they hurt her she doesn't want to be approached anymore.

Aún cuando se graduó, le pedí a las docentes y cuerpo administrativo de la escuela que no la ascendieran de nivel, me quede tranquila, pues lleve informes médicos y todo lo necesario para que aceptaran mi petición.

Amelie recibe terapia, ocupacional y de lenguaje. Ella no se sienta, no espera y no se adapta a los cambios. Si la irritas es capaz de morderte o llorar desconsolada. Ella no es agresiva con otros niños, le gustan, pero si puede hacer caer por juego y si la lastiman ya no quiere que se le acerquen.

To all these, her teacher added me to a group yesterday from 1st grade and told me that they couldn't leave her in initial, they assure me that her new teacher was going to help her and this is where I start to make catharsis.

How is a teacher, one, going to be able to control a child who is hyperactive and won't sit down, while attending to other children as well? Amelie wears nappies and of course they will only watch online classes but those classes are not suitable for her developmental level.

Imagine how I feel, when I have to say: my daughter can't go to first grade, I feel like the worst mother in the world, because it sounds like I distrust her abilities, however it is the opposite, if I let her advance to a level that she is not ready for, this will not help her, it will irritate her, stress her and cause discomfort to whoever is in charge of her.

A todas éstas, su maestra me agregó a un grupo ayer de 1ro de Básica y me dijo que no la podían dejar en inicial, aseguran que su nueva maestra la iba a ayudar y aquí es donde comienzo a hacer catarsis.

¿Cómo una maestra, una, va a poder controlar a una niña que es hiperactiva y no se sienta, mientras atiende a otros niños también?, Amelie usa pañales y desde luego solo verán clases On-line pero esas clases no estan aptas para su nivel de desarrollo.

Imagina como me siento, cuando debo decir: mi hija no puede pasar a primero, me siento la peor madre del mundo, pues suena a que desconfio de sus capacidades, sin embargo es todo lo contrario, si dejo que la avancen a un nivel para el que ella no está preparada, esto no la va a ayudar, la va a irritar, estresar y causar molestia a quien esté a su cargo.

On the recommendation of her doctor and therapists, she should be given easy activities, she should be stimulated, guided and thus helped to advance, without pressure.

Amelie will not have a shadow teacher, which is what she needs, she will only have the same teacher, who in addition to her, has to take care of 20 other children.

What really bothers me is that they made me run to the hospital to get reports, to get copies, to get signatures, so that in the end, they would not listen to my petition or would take it for less.

Por recomendación de su médico y terapeutas, ella debe realizar actividades fáciles, debe ser estimulada, guiada y así ayudarla a avanzar, sin preciones.

Amelie, no tendra una maestra sombra, que es lo que necesita, ella solo tendra la misma maestra, que además de a ella, debe atender a 20 niños más.

Lo que realmente me molesta, es que me hicieron correr en el hospital a buscar informes, sacar copias, buscar firmas, para que a la final, no escucharan mi petición o la tomarán por menos.

---

Who better than me to get to know my daughter?

Amelie is super intelligent, cheerful and curious. But her developmental age of social maturity is 10 months and her sensory-motor age is that of a 1 to 3 year old, she is completely dependent on me to do her activities and for her personal hygiene.

Yesterday I cried out of helplessness, writing this I do too, it seems to me that many lack humanity and seek to understand that there are some who live in a blue world and that in that world they should fly at their own pace and not ours.

¿Quien mejor que yo, para conocer a mi hija?

Amelie es super Inteligente, alegre y curiosa. Pero su edad de desarrollo de madurez social es de 10 meses y su edad sensorio-motriz es de una niña de 1 a 3 años, ella depende completamente de mi para hacer sus actividades y para su aseo personal.

Ayer lloré de impotencia, escribiendo esto también lo hago, me parece que a muchos les falta humanidad y buscar entender que hay algunos que viven en un mundo azul y que en ese mundo deben volar a su ritmo y no al nuestro.

People can imagine my fears, what if I take her to school and she falls, or runs away and gets hit by a car? When covid-19 wasn't there yet, I had hard days at school, a teacher who wasn't her, she made ugly faces at her and I don't know what she did to my daughter, but it got to the point that my little girl was crying with terror and I didn't even want to see her.

I had to speak many times at the headmaster's office, give a class to parents about children with special conditions. That teacher told a child to my face that my daughter was a monster but not to be afraid, believe me I went out with my daughter in my arms crying because I couldn't give her a good smack.

La gente si se imagina mis miedos, ¿qué tal si la llevo a la escuela y se cae, o se escapa y la pisa un carro? Cuando aún no estaba el covid-19, tuve días duros en la escuela, una mestra que no era de ella, le hacia caras feas y no sé que le hizo a mi hija, pero llegó el punto de que mi pequeña lloraba de terror y no quería ni verla.

Tuve que hablar muchas veces en la dirección, dar una clase a los padres, sobre niños con condiciones especiales. Esa maestra, le dijo a un niño en mi cara, que mi hija era un monstruo pero que no tuviera miedo, créanme salí con mi hija en brazos llorando, por no poder darle un buen golpe.

_{Image taken by @frankches for me}

I fear that all this will be repeated, sometimes children are hard too and not all parents teach their children that there are others with different abilities. Human beings are very limited and afraid of the unknown.

I believe in my daughter, I love her with my whole life, I long for her development and evolution, I wish with all my heart that she will talk, but I cannot force her and I must go slowly, as she has her own rhythm.

Temo que todo esto se repita, a veces los niños son duros también y no todos los padres enseñan a sus hijos que hay otros con habilidades diferentes. El ser humano es muy limitado y le teme a lo desconocido.

Yo creo en mi hija, la amo con vida entera, anhelo su desarrollo y evolución, deseo con todo mi corazón que hable, pero no puedo forzarla y debo ir con calma, ya que ella tiene su propio ritmo.