Its a hard subject to discuss, but in relation to Charlie Guard, the experimental treatment available in the US, in the opinion of clinicians, would not have saved his life, nor would it have had any significant impact on his quality of life. At best the doctor able to administer the treatment would have gained some data.
GOSH (Great Ormond Street Hospital) is one of the worlds leading children focussed hospitals, it is beyond belief that they would do anything except what is in the best interests of the patient.
If I were Charlies parents, I may have also fought this as hard as they did, because they have to hope beyond hope for a miracle, but the Courts found it was less harmful to let him die.
AFAIK these are the facts. I think we need to be careful about using such emotive and difficult situations to draw conclusions about wider society from.