having a daughter with Thallasemea

in #father2 years ago (edited)

About six months ago a friend of mine asked me if I wanted to talk about "thalasemea". I first thought about it with my wife if it would be usefull to make it publically. At some point we went for it. Never had any experience about presenting something and having someone recoding it on video especially for Social Media.
So it happend and the producer would contact me the moment the video is online. I was curious, because I didn't even get to see the video before it gets posted.
A week or two had passed and I got a message that the video is online. So many positive reactions at once made me feel that I am not alone. Still there so much to tell and to do about "thalasemea'"

click here to see the video

vid opname life experience alone.jpeg